~Thalassaemia and Sickle Cell Society (TSCS) President Shri. Chandrakant Agarwal and a few other NGO’s meet the Hon’ble Vice President and explain the need for a bill for the prevention of Thalassemia~
National, 12th June 2022: Thalassaemia and Sickle Cell Society (TSCS) a registered non-profit organization along with a few NGO’s working towards Thalassemia met the Hon’ble Vice President, Shri. Venkaiah Naidu discussed the situation of Thalassemia in India and the need for a bill to prevent Thalassemia. TSCS President Shri Chandrakant Agarwal invited the Hon’ble Vice President for the inauguration of a prominent research lab at TSCS.
According to many recent research reports, India is recognized to be the capital of Thalassemia in the World. The country has been witnessing a rise in Thalassemia patients, a genetic disorder. TSCS, the World’s biggest society serving more than 3000 Thalassemia Children with modern equipment & specialist doctors, Free of Cost in Hyderabad has recently organized a first-of-its-kind National Level Conference on Prevention of Thalassemia and Sickle Cell Anemia bringing together several NGO’s who have been working rigorously for Thalassemia treatment and prevention.
The services of TSCS were recognized by the Hon’ble President of India, Shri Ramnath Kovind, and the society was invited to Rashtrapati Bhavan in Delhi.
TSCS along with 9 other NGOs from all over India have drafted the bill for prevention of Thalassemia. A copy of the bill has also been submitted to the Govt which has to present in the Parliament, for implementation. The request is already in PM’s program.
Speaking about the meeting TSCS President Shri. Chandrakant Agarwal said, “We are extremely honoured to get this privilege of meeting our Hon’ble Vice President Shri. Venkaiah Naidu and explaining to him about the situation of Thalassemia is our country and the need of a bill for its prevention. He has extended his support to us and also promised to visit our lab in the near future… Thalassemia is an easily preventable disorder. It can also be eradicated. We have all been working towards children suffering with Thalassemia and understand the suffering one has to go through. TSCS and a few NGOs have recently gathered at a national conference where the State Govt. of Telangana also extended their support. We are glad that this awareness is spreading nationally and in the Govt. Of India has also been extending their support towards the eradication of Thalassemia in India”
About Thalassaemia and Sickle Cell Society (TSCS): Thalassaemia and Sickle Cell Society (TSCS) is a registered (Reg No. 5359) non-profit, non-governmental organization founded in 1998 represented mainly by a small group of patient’s parents, doctors, well-wishers and philanthropists to provide the best treatment and management to patients suffering from Thalassemia and Sickle Cell Anemia. Ever it was since started, the priority has always been to improve the services provided to patients in accordance with the latest developments in treatment, management, and prevention the genetic disorder.
With the objective of helping all Thalassemia and Sickle Cell Anemia affected children, TSCS has established a well-maintained transfusion centre, high-quality blood bank, modern diagnostic laboratory, and advanced research centre under one roof to support more than 2800 registered patients.